Tag Archives: family

No longer waiting for a miracle

In February I posted a blog which stemmed from a news story on a 16-year-old’s brush with the benefits system. Edward Bright, who lost his limbs in early childhood due to meningitis, received a letter insisting he is reassessed regarding … Continue reading

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Finding a long lost photo of me with my twin

‘Having a happy month!’ A week on, and I’m still waiting for the online publication of my piece on Jenny’s life in a national newspaper. It’s a mixture of excitement and a little frustration. Meanwhile, providing the photographs set me … Continue reading

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Getting Jenny’s story out there

If at first you don’t succeed… My blog entries this month have been a bit thin on the ground. And that’s not because of laziness or lack of interest, I hasten to point out. I’ve been focussing on writing for … Continue reading

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That painful difference

Twins and disability Yesterday’s Mirror told the story of twins Ava and Louie, born nine weeks premature, who both have cerebral palsy. Ava had surgery which now allows her to walk, and their mum talks of how heart-breaking it is … Continue reading

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Waiting for a miracle?

The strange logic of annual benefit assessments for the disabled The last few days saw the story of a 16-year-old’s brush with the benefits system. Edward Bright, who lost his limbs in early childhood due to meningitis, received a letter … Continue reading

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The girl in the chair

Single YouTube episode of early ’70s ground-breaking TV Let’s pick up from where we left off in the last blog – the lack of positive role models for disabled kids growing up in the 1970s and my aversion to Colin, … Continue reading

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The not so Secret Garden

Quite frankly Colin needed a damn good slap In early November, I enjoyed writing posts about disability and the First World War – the long shadow it cast into the 1970s during mine and Jenny’s formative years. The positive images … Continue reading

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Time to share our story

My disabled twin sister died in a fire Putting this into the public domain isn’t easy. It concerns a traumatic event of half a lifetime ago, and a close connection ruptured. It’s not something I’ve talked about with many people. … Continue reading

Posted in bereavement, burns, cerebral palsy, death, disability, family, human interest, lifestyle, premature babies, twins | Tagged , , , , , , , , , , , , | 4 Comments